Background Statement
The Muscular Dystrophy Association (MDA) is a nonprofit health agency that was founded in 1950. MDA is dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and support services, and far-reaching professional and public health education. With national headquarters in Chicago, MDA has 88 local offices across the country, sponsors some 200 Care Centers and supports more than 300 research projects around the world.
MDA is the nation's largest nongovernmental funder of scientific research seeking better treatments and cures for the more than 40 neuromuscular diseases in its program. MDA has funded the discovery of the genetic underpinnings of almost all diseases in its program - including the muscular dystrophies, spinal muscular atrophy, ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease) and several other neuromuscular diseases - and treatments based on this knowledge are being developed, with support from MDA.
The Association's comprehensive services program includes diagnostic and follow-up medical consultations, flu shots, support groups, MDA summer camps for youngsters, a national medical equipment program, assistance with equipment repairs and modifications, and resource referrals.
Through its national advocacy program, MDA works to make life better for people with muscular dystrophy and related muscle diseases by providing representation in matters of public policy and research advancement, nationally and internationally; and facilitating active involvement in these areas by the people it serves.