Every 90 minutes, someone is diagnosed with ALS and another person loses their life to it. Though most cases occur in people between 40 and 70 years old, with an average diagnosis age of 55, the disease can also strike individuals in their twenties and thirties. With a life expectancy of just 2-4 years, ALS often appears without warning or family history, making every moment precious and intensifying the emotional toll on individuals and families.
Paul’s Mystery Ship To End ALS is dedicated to honoring the memories of those who have bravely battled ALS, promoting advocacy, and raising awareness of this debilitating disease. We are committed to supporting those currently diagnosed with ALS and providing vital aid to families navigating its challenges.
Our foundation brings hope amid the storm of ALS by supporting research for a cure and offering financial aid to help families with medical bills and essential equipment. We also donate to ALS rehab facilities, provide scholarships for students impacted by ALS and other neurological diseases, and offer programs to support and bring comfort to individuals with ALS and their loved ones.
Honoring the memories of those who have lost their battle with ALS, promoting advocacy through awareness of ALS, and offering support for families facing ALS together: keeping HOPE, KINDNESS, and LOVE alive.
Paul V. Dannels, born on January 7, 1950, his mystery ship took him beyond the sunset to life eternal on March 14, 2020, after battling Bulbar ALS. Despite the diagnosis on January 18, 2019, Paul embraced love and hope, never yielding to negativity. His favorite song, "Ride Captain Ride," echoed his thoughts on this journey.
Paul's light continues to inspire us as we remember his courage. In less than 14 months, ALS progressed swiftly, but Paul faced it with grace and humility, leaving behind a legacy of wisdom, compassion, and love. His impact touched many lives, fostering a supportive community, his cherished "Village".
Honoring Paul's life and spreading awareness about ALS remain crucial. His selflessness, kindness, and infectious smile are remembered fondly. Paul's faith, love for family and friends, and resilience serve as timeless lessons for us all.
Paul was our Witness and taught us to live life to its fullest each day. The fortitude that Paul displayed as he traveled his journey with ALS to the sunset is a life lesson to all of us. Paul’s gentle, kind spirit and incredible faith in God lives on.
Paul’s Mottos Became:
“Always BE Humble & Kind” & “It’s OK To Be GOOD”
This Is Why Paul’s Mystery Ship Sails To End ALS.
Organization name
Paul S Mystery Ship to End ALS
2022
Tax id (EIN)
88-2999425
Category
Diseases, Disorders & Medical Disciplines, Health Care, Medical Research, Philanthropy, Voluntarism & Grantmaking Foundations, Public & Societal Benefit
Organization Size
Small Organization
Address
4940 BLUESKY DRCO, US
US