The Chelsea Hutchison Foundation grants comfort and hope to those living with the daily effects of epilepsy/seizures to reduce the number of seizure-related deaths that occur in the United States each year. CHF provides financial assistance for monitoring devices, service dogs and wish trips.
"Our world was completely turned upside down when our daughter, at the age of five, experienced her first seizure and was diagnosed with a seizure disorder. Neither of us knew much about epilepsy at that time and had certainly never experiencing watching someone have a seizure. To have that moment be our own child was the most terrifying moment of our lives. We did not have anyone in our immediate or distant circles who had experience with seizure disorders. In short, we felt completely lost. We learned about the Chelsea Hutchison Foundation through social media. This foundation had been a beacon of light during many countless moments of darkness. They have been a resource for our family linking us with credible research, connecting us with other families in similar situations, and offering emotional, intellectual, and even financial support when it has been needed. To think that everything they do for the community was birthed from their own devastating tragedy is beyond humbling. CHF is truly a remarkable organization."
The Chelsea Hutchison Foundation grants comfort and hope to those affected by epilepsy through providing tangible monitoring resources, vital information, and a safe haven for conversation and community.
Our main goal is to raise awareness of SUDEP and to make a positive difference in the lives of individuals and families living with epilepsy.
We raise funds to provide education about SUDEP and to provide seizure response dog grants and movement monitors that help to protect against SUDEP. In addition, we grant wish trips to Epilepsy Awareness Educational Expo and Day at Disneyland and Purple Day Around the World.
We stay up-to-date on current trends in medical technology in order to be able to provide the most effective devices as they become available.
We respect the value and quality of life of every person living with epilepsy.
We are dedicated to providing opportunities that allow individuals and families greater independence, increased confidence, ability to enjoy social environments, and community understanding.
The Chelsea Hutchison Foundation was founded after the sudden and unexpected death of Chelsea at the age of 16 in 2009.
After losing Chelsea, her family knew they needed to do something in her name to make a difference. The Chelsea Hutchison Foundation was created, and they began the mission of raising public SUDEP (sudden unexpected death in epilepsy) awareness so families weren't blindsided as they were. The Foundation provides financial assistance for daytime and nighttime movement monitors, seizure alert/response service dogs and wish trips to two very special epilepsy related expos each year.
Had Chelsea's family known to be concerned, they would have, without a doubt, had every line of defense they could find in place for Chelsea in hopes of being alerted to a night-time seizure. They believe strongly that they might have been able to save her life if they had been informed of the risks and had an opportunity to monitor her.
Organization name
Chelsea Hutchison Foundation
2009
Tax id (EIN)
27-1317638
Category
Diseases, Disorders & Medical Disciplines
Organization Size
Medium Organization
Address
Post Office Box 630048US
CO, US
Phone
303-250-7739
Fax
303-484-3338